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Contextual consent: ethical mining of social media for health research

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Author(s)

Christopher Norval, Tristan Henderson

School/Research organisations

Abstract

Social media are a rich source of insight for data mining and user centred research, but the question of consent arises when studying such data without the express knowledge of the creator. Case studies that mine social data from users of online services such as Facebook and Twitter are becoming increasingly common. This has led to calls for an open discussion into how researchers can best use these vast resources to make innovative findings while still respecting fundamental ethical principles. In this position paper we highlight some key considerations for this topic and argue that the conditions of informed consent are often not being met, and that using social media data that some deem free to access and analyse may result in undesirable consequences, particularly within the domain of health research and other sensitive topics. We posit that successful exploitation of online personal data, particularly for health and other sensitive research, requires new and usable methods of obtaining consent from the user.
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Original languageEnglish
Title of host publicationProceedings of the WSDM 2017 Workshop on Mining Online Health Reports
Number of pages4
Publication statusPublished - 26 Jan 2017
EventWSDM Workshop on Mining Online Health Reports - Guildhall, Cambridge, United Kingdom
Duration: 10 Feb 201710 Feb 2017
https://sites.google.com/site/mohrs2017/

Workshop

WorkshopWSDM Workshop on Mining Online Health Reports
CountryUnited Kingdom
CityCambridge
Period10/02/1710/02/17
Internet address

    Research areas

  • Ethics, Privacy, Health, Consent, Social media

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