Skip to content

Research at St Andrews

Development of the cancer-related loneliness assessment tool: using the findings of a qualitative analysis to generate questionnaire items

Research output: Contribution to journalArticle

DOI

Open Access permissions

Open

Author(s)

K. B. Cunningham, T. Kroll, M. Wells

School/Research organisations

Abstract

The aim of this research was to develop a tool to identify and assess the qualities of cancer-related loneliness in adult cancer survivors who have completed treatment. In addition to reporting the development of the tool, we explicate the process of using the findings of a qualitative analysis to generate questionnaire items, as currently little guidance exists on this topic. The findings of our qualitative research exploring the experience of loneliness in adult cancer survivors who had completed treatment, together with the findings of our concept analysis of loneliness, were used to develop an assessment tool for cancer-related loneliness following treatment completion. Cognitive testing was undertaken to assess fidelity of comprehension and feasibility in administration. The Cancer-Related Loneliness Assessment Tool is a ten-item self-report questionnaire capturing the essential elements of cancer-related loneliness following treatment completion. Experts believed the questionnaire to be face-valid and usable in clinical practice, and preliminary cognitive testing indicated that the items generate the information intended and individuals have little trouble completing the tool.Following further development work, the tool could be employed to identify cancer-related loneliness following treatment completion. It could also aid with the development/adaptation and evaluation of person-centred interventions to address such loneliness.
Close

Details

Original languageEnglish
Article numbere12769
JournalEuropean Journal of Cancer Care
Volume27
Issue number2
Early online date15 Sep 2017
DOIs
Publication statusPublished - Mar 2018

    Research areas

  • Cancer survivors, Loneliness, Assessment tool, Questionnaire development, Qualitative findings

Discover related content
Find related publications, people, projects and more using interactive charts.

View graph of relations

Related by author

  1. Loneliness and quality of life after head and neck cancer

    Dahill, A., Al-Nakisbandi, H., Cunningham, K. B., Humphris, G. M., Lowe, D. & Rogers, S. N., 1 Oct 2020, In : British Journal of Oral and Maxillofacial Surgery. 58, 8, p. P959-965

    Research output: Contribution to journalArticle

  2. Children and parents’ perspectives on the acceptability of three management strategies for dental caries in primary teeth within the ‘Filling Children’s Teeth: Indicated or Not’ (FiCTION) randomised controlled trial – a qualitative study

    El-Yousfi, S., Innes, N. P. T., Holmes, R. D., Freeman, R., Cunningham, K. B., McColl, E., Maguire, A., Douglas, G. V. A., Clarkson, J. E. & Marshman, Z., 12 Mar 2020, In : BMC Oral Health. 20, 12 p., 69.

    Research output: Contribution to journalArticle

  3. Dental professionals’ experiences of managing children with carious lesions in their primary teeth – a qualitative study within the FiCTION randomised controlled trial

    Marshman, Z., Kettle, J. E., Holmes, R. D., Cunningham, K. B., Freeman, R., Gibson, B. J., McColl, E., Maguire, A., Douglas, G. V. A., Clarkson, J. E. & Innes, N. P. T., 4 Mar 2020, In : BMC Oral Health. 20, 16 p., 64.

    Research output: Contribution to journalArticle

Related by journal

  1. European Journal of Cancer Care (Journal)

    Gozde Ozakinci (Member of editorial board)

    10 Apr 2014

    Activity: Publication peer-review and editorial work typesEditor of research journal

Related by journal

  1. Automated screening for distress: a perspective for the future

    Rana, R., Latif, S., Gururajan, R., Gray, A., Mackenzie, G., Humphris, G. & Dunn, J., 18 Jul 2019, In : European Journal of Cancer Care. 28, 4, e13033.

    Research output: Contribution to journalArticle

  2. Fear of cancer recurrence in oral and oropharangeal cancer patients: an investigation of the clinical encounter

    Ozakinci, G., Swash, B., Humphris, G., Rogers, S. N. & Hulbert-Williams, N. J., Jan 2018, In : European Journal of Cancer Care. 27, 1, e12785.

    Research output: Contribution to journalArticle

  3. Client and practitioner perspectives on the screening mammography experience

    Whelehan, P., Evans, A. & Ozakinci, G., May 2017, In : European Journal of Cancer Care. 26, e12580.

    Research output: Contribution to journalArticle

ID: 250889855

Top