Skip to content

Research at St Andrews

Exploring transition from paediatric to adult health services for people with cerebral palsy

Research output: Contribution to conferenceAbstract

Abstract

Transition from paediatric to adult health services has been defined as ‘a purposeful, planned process that addresses the medical, psychosocial, educational and vocational needs of adolescents’ (National Steering Group for Specialist Children’s Services, 2008). However, studies have characterised current transition practice as poorly planned and lacking co-ordination, particularly for young people with complex difficulties such as those with cerebral palsy (CP), where there is no clear referral pathway to adult services. This raises concerns about the continuity of care as well as the negative impact of this transition experience on young people and their families. Additionally, very little research has investigated transition arrangements in Scotland even though Scotland has its own NHS and health policies. Therefore, there is a need to gain a better understanding of current provision for transition to allow for development of evidence based practice.
Objectives: To establish what provisions are currently available for transition in Scotland and what clinicians believe future provisions should involve, with the long term aim of optimizing transition for young people with CP.
Methods: Semi-structured interviews were conducted with 13 community paediatricians from 12 different Scottish health boards. Interviews were audio recorded and transcribed verbatim. The transcripts were then analysed thematically using framework analysis.
Results: Transition provision varied greatly across health boards. In particular there was variation in the age at which transition planning started and the level of coordination and communication both between health services and education and social services, and between paediatric and adult services. Areas of transition highlighted as requiring improvement varied greatly between health boards, but included the need for a clear transition pathway with greater availability of appropriate adult services, and greater information and support for young people and their families including key workers. Additionally all interviewees characterised this time period as highly stressful for families.
Conclusion: This study has revealed that current transition provision in Scotland varies greatly. It is not clear what effect this variation is having on young people and their families. Further work is needed to ensure that all young people experience a well-planned and co-ordinated transition which addresses their health care needs.
Close

Details

Original languageEnglish
Publication statusPublished - 6 Sep 2012
EventInternational Society for Social Pediatrics and Child Health - St Andrews, United Kingdom
Duration: 6 Sep 20128 Sep 2012

Conference

ConferenceInternational Society for Social Pediatrics and Child Health
CountryUnited Kingdom
CitySt Andrews
Period6/09/128/09/12

Discover related content
Find related publications, people, projects and more using interactive charts.

View graph of relations

Related by author

  1. Transition from paediatric to adult health services in Scotland for young people with cerebral palsy

    Wright, A. E., Robb, J. & Shearer, M. C., Jun 2016, In : Journal of Child Health Care. 20, 2, p. 205-213 9 p.

    Research output: Contribution to journalArticle

  2. Hip displacement in children with cerebral palsy in Scotland: a total population study

    Bugler, K. E., Gaston, M. S. & Robb, J. E., 10 Nov 2018, In : Journal of Children's Orthopaedics. 12, 6, p. 635-639 5 p.

    Research output: Contribution to journalArticle

  3. The head shaft angle is associated with hip displacement in children at GMFCS levels III-V - a population based study

    Finlayson, L., Czuba, T., Gaston, M. S., Hägglund, G. & Robb, J. E., 5 Oct 2018, In : BMC Musculoskeletal Disorders. 19, 4 p., 356.

    Research output: Contribution to journalArticle

  4. Progress in stamping out FGM

    Smith, F. H. & Shearer, M. C., 30 Oct 2014, Student BMJ.

    Research output: Contribution to specialist publicationArticle

ID: 27332938

Top