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Research at St Andrews

Integrating healthcare data for enhanced citizen-centred care and analytics

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Author(s)

Juliana Kuster Filipe Bowles, Juan Jose Mendoza Santana, Andreas Francois Vermeulen, Thais Christina Webber dos Santos, Euan Blackledge

School/Research organisations

Abstract

The potential of healthcare systems worldwide is expanding as new medical devices and data sources are regularly presented to healthcare providers which could be used to personalise, improve and revise treatments further. However, there is presently a large gap between the data collected, the systems that store the data, and any ability to perform big data analytics to combinations of such data. This paper suggests a novel approach to integrate data from multiple sources and formats, by providing a uniform structure to the data in a healthcare data lake with multiple zones reflecting how refined the data is: from raw to curated when ready to be consumed or used for analysis. The integration further requires solutions that can be proven to be secure, such as patient-centric data sharing agreements (smart contracts) on a blockchain, and novel privacy-preserving methods for extracting metadata from data sources, originally derived from partially-structured or from completely unstructured data. Work presented here is being developed as part of an EU project with the ultimate aim to develop solutions for integrating healthcare data for enhanced citizen-centred care and analytics across Europe.
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Original languageEnglish
Title of host publicationIntegrated Citizen Centered Digital Health and Social Care
Subtitle of host publicationCitizens as Data Producers and Service co-Creators
EditorsM. Hägglund, P. Gallos, K. Häyrinen, K. Saranto, P. Scott, A. Värri, J. Delgado, U.-M. Kinnunen, L.B. Pape-Haugaard, L.-M. Peltonen
PublisherIOS Press
Pages17-21
ISBN (Electronic)9781643681450
ISBN (Print)9781643681443
DOIs
Publication statusPublished - 26 Nov 2020
EventEFMI 2020 Special Topic Conference: Integrating healthcare data for enhanced citizen-centred care and analytics - Online
Duration: 26 Nov 202027 Nov 2020
https://efmi.org/2020/02/10/efmi-stc2020-citizen-centered-digital-and-integrated-health-and-social-services/

Publication series

NameStudies in Health Technology and Informatics
Volume275

Conference

ConferenceEFMI 2020 Special Topic Conference
Abbreviated titleEFMI STC 2020
Period26/11/2027/11/20
Internet address

    Research areas

  • Healthcare, Data lake, Integration, Blockchain, Data analytics

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ID: 270110346

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