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Principles and operational model for governing Diabetes Action Canada’s data repository for patient-oriented research

Research output: Chapter in Book/Report/Conference proceedingConference contribution


Donald Willison, Joslyn Trowbridge, Francis Sullivan, Karim Keshavjee, Michelle Greiver

School/Research organisations


Diabetes Action Canada is developing a data repository andregistry of potential research participants to support research,QI, and service to improve diabetes care. Central to the repositoryare pseudonymised linkable electronic medical records (EMRs) from family practices that are participating in theCanadian Primary Care Sentinel Surveillance Network (CPCSSN).


Original languageEnglish
Title of host publicationInternational Journal of Population Data Science
PublisherSwansea University
Number of pages1
Publication statusPublished - 14 Sep 2018
EventInternational Population Data Linkage Conference (IPDLN 2018) - Banff Centre, Banff, Canada
Duration: 12 Sep 201814 Sep 2018


ConferenceInternational Population Data Linkage Conference (IPDLN 2018)
Abbreviated titleIPDLN
Internet address

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